Wednesday, March 29, 2023
Time: 10:00-11:00 AM EST
Join advocate, research, and industry leaders as they discuss lessons learned in rare disease clinical research design when examining the process through an accessibility lens. Best practices and real examples of successful accessible clinical research in rare disease will be shared.
Moderator:
Patti Murphy
Sr. Director of Therapeutic Expertise, ICON plc
Panelists:
Rigo Garcia
Executive Director, Hemophilia Foundation of Southern California
Veronica Moore
Sr. Manager, Patient Advocacy, Horizon Therapeutics
Zo Ratnasi
President & Master strategist, sixsense strategy group
Tricha Shivas
Chief Strategy Officer, Foundation for Sarcoidosis Research