Wednesday, March 29, 2023
Time: 11:00 AM-12:00 PM EST
This fireside chat between rare disease parents and paediatrician will delve into personal insights around accessibility for study participants who have a unique set of needs based on age and development. Speakers will explore nuanced issues, including what barriers they are seeing in clinical trial accessibility for paediatric rare disease patients and how those barriers might be addressed, mitigated, or solved for.
Moderator:
Firas Taha
Medical Director, Neurology, Medical Affairs, ICON plc
Panelists:
Jana Banesh
Director of Therapeutic Expertise, ICON plc
Sarita Edwards
CEO & President, The E.WE Foundation
Ryan Sheedy
Dad, Rare Disease Caregiver & Founder, mejo